Home » 2013 » November

Little Keeper Sleeper and Contest

Put a stop to unwanted removal of sleepers and diapers. “Oh no, this can’t be happening!” was the thought than ran through our minds when our triplets were toddlers and going through a phase of taking off their sleepers and diapers. With another daughter only twenty-two months older, a dog, and a busy household, we did not want to be spending our ...

The Foundation for Angelman Syndrome Therapeutics 2013 Gala

A Weekend-Long Event Including an Educational Seminar, Scientific Symposium, Fundraising Gala and more FAST Global Summit on Angelman Syndrome The Foundation for Angelman Syndrome Therapeutics ('FAST') is pleased to announce that the 2nd Annual Global Summit on Angelman Syndrome will take place on Friday and Saturday, December 6-7, 2013 at the Hyatt Regency Chicago. You will not want to miss this year's excitement ...

Clinical Trial Begins on a New Treatment Using Cannabis for Intractable Seizures in Children

CANNABIDIOL (CBD), the non-psychoactive compound of cannabis There is a study underway  to test the safety and efficacy of Cannabidiol (CBD), the non-psychoactive compound of cannabis. Some of the experts involved are the Angelman communities’ very own specialists Dr. Elizabeth A. Thiele and Dr. Ronald Thibert of Massachusetts General Hospital. Both Physicians are members of the Scientific Advisory Committee of the Angelman ...

Angels in Action

Celebrating the Abilities of our Angels By Anne Chatteau (In French and English) François a 24 ans et est UPD. nous avons eu le diagnostic quand il avait 13 ans. Jusque là, il avait vécu presque comme s'il n'était pas handicapé malgré un écart de plus en plus grand avec les autres enfants.  . Il a marché à 25 mois mais le langage ...

Tips for Managing Holiday Stress

By Eileen Braun, Executive Director of the Angelman Syndrome Foundation and mother to a young lady with Angelman syndrome It’s not just about getting through and surviving the holidays, we all want to truly enjoy our time with family and friends. How do we balance all that we think we need or want to do and still enjoy the holidays? We ...

A Father’s View – By Peter Kraft

Greetings Angleman community and all the readers of “Angelman Today”. I would like to thank Liz Sordia for stepping out and showing leadership by creating this periodical to bring us all closer and help us find ways to meet our challenges that will maximize our Angles’ potential and the opportunity to share with you the experience of the moment I ...

One More Song – Documentary By Regie Hamm

The True Story of Shattered Dreams and Sweet Redemption that Inspired the American Idol Song Time Of My Life. http://www.kickstarter.com/projects/onemoresong/one-more-song Maybe you have to lose everything you really want, to find out what you really need. Maybe a song can change the world...or at least a small corner of it. Maybe life really is more beautiful than any of us could ever ...