Home » 2015 » March

Editor’s Letter March-April 2015

'Spring has sprung. Here in Florida the flowers are blooming and allergies are roaring. The beautiful weather in spring seems to inspire a sense of renewal and fresh ideas. The shamrocks in the grass always grab my attention for a second glance in hopes of finding a four leaf clover and capturing some good ‘ol’ “Luck of the Irish!”. That ...

Matthew’s Friends – Ketogenic Dietary Therapies

Intractable (Drug Resistant) Epilepsy; 1 in 104 people are affected with epilepsy in the UK** and over 50 million worldwide.  It is one of the most common serious neurological conditions with approximately 30 different epilepsy syndromes and over 38 different types of seizures. The majority of cases of epilepsy can be treated successfully with modern anti-epileptic drugs (AED’s) used either as single ...

New York Fashion Show – Angelman Syndrome Collection

Introducing a New York City Fashion Show to raise awareness for Angelman Syndrome  Joanna Marcella a British designer and the founder of the Fashion Designers’ and Craft makers’ Network; would like to announce the insertion of an electrifying Collections Showcase in aid of Angelman Syndrome. Over thirty innovative international Fashion designers will be exhibiting their original collections at the first ever ...

Introducing The Kourkouta Family And The Angelman Greece Organization

By Clairy Kourkouta “Whenever I thought of myself as a mother, it never crossed my mind that I could have a child with special needs.” I always admired the families of special needs children so much and in fact I was saying that for people with special needs it’s really difficult to live in Greece, since common things such as government allowances, ...

FIND – Further Inform Neurogenetic Disorders

The Cerebra Centre for Neurodevelopmental Disorders is led by Professor Chris Oliver at the University of Birmingham.  The aim of the Centre is to conduct high quality research with children and adults with neurodevelopmental disorders.  The Centre focuses on researching behaviour, cognition and emotions. The Cerebra Centre team has developed a novel online resource to improve the exchange of knowledge about ...