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Editor’s Letter July-August 2015

We are celebrating our 2nd year anniversary here at Angelman Today! Two years of creating this online magazine that has circled the globe countless times for our wonderful community. I could not do this alone. A big thank you to the many contributors that send me links, articles and pictures to publish each month. This community is so amazing, if there ...

Le syndrome d’Angelman – Parcours de vie des adultes: A book by Anne Chateau and Odile Piquerez just published in France and in French

This work covers all the aspects of the life of young adults with a rare neurogenetic disorder, the Angelman syndrome. It is still a poorly understood disability, especially with regard to adults, many of whom have never been diagnosed or have been diagnosed belatedly. Sparkling personalities often jovial and exuberant, they involve their parents, caregivers, educators and specialists in an enigmatic ...

Nutrition labeling and the dangers that could be hiding

                By Marilyn Kennedy We are all pretty conscientious about reading food labels, especially those of us who have or who are caretakers for loved ones who have serious illness, allergies and/or dietary restrictions. I recently went to the outpatient lab at my local hospital to have a routine blood draw. About halfway through, I began to pass out and so the phlebotomist ...

2015 Lite The Night On Fire Event

Please join us for a unique fundraising event on Friday, Sept. 11th, 2015 at Boston Harbor Hotel from 7:00-11:30pm. Enjoy great food & drinks, dancing to the band Fusion, guest speakers, silent auction, and inspiring 'Lite the Night' paddle raise. FAST is committed to raising at least $20 million to continue support of the FIRE Initiative (FAST Integrative Research Environment), the most ...