Angels in Action – Kamaray

July 11, 2014 / Comments Off

Celebrating the Abilities of Our Angels

By Andria Sivill, Mom to Kamaray

This is KamaraySivill, age 7 from South Sioux City NE riding her new adaptive TRIAID bike she won through the Great Bike Giveaway.

Kami is enjoying her summer & newfound freedom riding in the outdoors.

Thank you,
Bart, Andria & Kamaray Sivill

In the previous March-April edition of Angelman Today, we helped to promote The Great Bike Giveaway through Friendshipcircle.org and we are proud to announce a winner from our very own Angelman community!!

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.