Angels-in-Action Sweet Caroline

July 21, 2015 / 1 Comment

By Adrian Roberts, Mom to Caroline

This is our Sweet Caroline and she was on her way to the 8TH grade prom in this pic. She attends Whittemore Park Middle and is 15 years old. She enjoys cheering for her school, was inducted into the Jr. Beta Club this year, and was on the Valentine’s Court at her school.

She enjoys being with her family, staying current with social media, swimming (of course), playing with her sisters, lying on the beach, and making others around her smile.

Caroline3

Her smile and laughter will illuminate any room she walks in. She tries her hardest at everything she does and she amazes us every day.

Although we aren’t seizure-free free they are few and far between and we know that we are extremely blessed.

One Comment

Kiefer Bosch

July 22, 2015 at 2:36 AM

As my Mom always says I am her most Precious Angel, but I turned 19 yrs old just 10 days ago & now I’ ve turned “a teenager ángel…” with all my hormones mixing & playing around…. &….. we are getting quite a tough time….
I see my Mom in tears roud the corners, but….. I don’t know what to do…. !!

Do you have any ideas ?

Thank you and love,
Kiefer

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

One Comment

Kiefer Bosch