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“Trick or Treat” Halloween Stickers, Cards and AAC Image

Here are some tips to help make your Halloween experience a little more 'Happy' and a little less 'Tricky' when you have a child with Angelman Syndrome. There is lots of fun to be had when participating in community Trick or Treating or attending Fall Festivals. We want our children to participate and be accepted in these activities. Select the right ...

October is AAC Awareness Month 2017

October is AAC Awareness Month! We wanted to compile an easy list for you to view the many options that are now available. Some of these apps are on sale from 50-75% OFF! Click the links from your device to download quick and easy. Proloquo2Go - 50% Discount from October 10,11,12. Avaz is now offering a 50% Discount from October 1-15th TouchChat HD ...

Angelman Biomarkers and Outcome Measures Alliance and Roche begin patient-centered qualitative research to inform potential outcome measures for Angelman syndrome clinical trials

Nashville, Tenn. (June 22, 2017) – A collaborative group of parent-driven organizations seeking a cure for Angelman syndrome has teamed up with F. Hoffmann-La Roche Ltd, (Roche), one of the world’s largest pharmaceutical and diagnostics companies, in the first phase of a study that will support the design of human clinical trials and treatment development for the disorder. Roche has committed funding to ...

What Angel Parents are saying about the Kayserbetten bed

“Justin absolutely loves his bed, he goes to it right after his bath every day after school for his nap! He takes me by the hand to lead me there, lol.  We got it last December for my house. It took me a little over a year to get him one at his father's house since his old Vail bed ...

Helpful Products For Back To School

Here is a list of products to help you prepare for getting the kids back to school! I'm sure you already have your basic list of school supplies so we wanted to tell you about some of these not so common products that may help. We included a few wearable items to support sensory needs. Compression clothing and weighted vests ...

Free App Friday 8-25-17

There are so many communication apps available for the Apple ios, leaving Android users feeling left out. We are happy to share with you a FREE communication app now available for Android! Check out this AAC app called 'AngelTalk'. About the app from Google Play: AngelTalk was built to help the children with complex communication needs talk with their parents and ...

Back to School Safety Products for Special Needs

Safety is always a number one priority for our loved ones with special needs. Here are just a few products that are high on our list this year. If i Need Help is a collection of wearable QR codes made for our loved one that may wander. The QR codes can be scanned to reveal contact information for guardians and any ...

Angel Goes Packing

By Alisa Guilietti Hi, my name is Nicolas and I am a 15-year-old who has Angelman Syndrome (AS). It's a rare genetic disease affecting my 15th chromosome. For me, it means I speak only two words rarely, my walking is unbalanced, I need help with a lot of my daily activities and I really like getting into things, so someone needs ...

Products To Help You Get Started On The High-Fat, Low-Carb Diet

We will start with healthy fat options that may not be so easy to find at your local grocery store. It is important to note that when starting a high fat therapeutic diet make sure you are being followed by a medical professional and using the best quality of fat sources. Here are links to order on amazon.com to get ...

KayserBetten beds and how they can provide a safe night’s sleep for you and your Angel.

The KayserBetten bed is one of the most highly recommended beds by parents of children with Angelman Syndrome. This bed will meet your child's medical, safety and behavior needs. One comment we keep hearing from parents is how well THEY sleep at night knowing their child is safe in their room. The beds are spacious, call and find out the right size ...
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