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Looking for Families for Video recording at CASS Conference in Edmonton

Dear Parent/Caregiver:

Many families of individuals with Angelman syndrome struggle to cope with challenging and difficult to manage behaviors. These behaviors can have a major impact on family life and also prevent the individual from participating fully in activities at home, school or in the community.

The Canadian Angelman Syndrome Society (CASS) and the Angelman Syndrome Foundation (ASF) have created a series of instructional modules to help families understand and address challenging behavior in individuals with Angelman syndrome. These modules can be accessed at www.angelmanbehaviors.org.

We would like to enhance these modules by adding video clips of individuals with Angelman syndrome engaging in challenging behavior and demonstrating options for what parents and caregivers may do differently in these situations. In order to do so, we are seeking families who are attending the CASS conference in Edmonton and are willing to be videotaped interacting with their son or daughter and receiving coaching on Wednesday July 13 and/orThursday July 14, 2016.

If you are interested in volunteering to participate in videotaping during the CASS conference, please indicate you would like to participate by sending an email message to info@angelman.org. We will then get back to you with further details.

Please take a moment to respond to this very short survey regarding behaviors that are most concerning for you and your family. https://www.surveymonkey.com/r/ChallengingBehaviors_AS

This survey will close on Friday, June 24, 2016 at 11:30 p.m. CST.

Thank you in advance for considering this important opportunity to help the Angelman community.

Canadian Angelman Syndrome Society Conference in 2016

cass logoSave the Date — CASS Conference in 2016!

Conference Co-chairs Terry Singleton and Kent Fleming advise newsletter readers that the CASS Board has approved the Double Tree by Hilton in Edmonton as the venue for the 14th International Conference of the Canadian Angelman Syndrome Society, scheduled for 13 to 16 July 2016.

The Registration Booklet PDF is now available to download here.

It is full of information which will allow you to start making plans to attend. It is the work of the 2016 Conference Committee made up of CASS Board Members and CASS Community Relation Committee members led by Co-Chairs, Terry Singleton and Kent Fleming.

Thank you, everyone, for helping to get the word out about your Edmonton 2016 Conference! We look forward to welcoming you to an informative and enjoyable
conference.

We are pleased to announce that CASS has contracted Alberta AdaptAbilities to provide management of the Kids’ Program at our upcoming Conference, “Prospecting for Possibilities” scheduled from 13 to 16 July 2016 in Edmonton.

Alberta AdaptAbilities Association is a registered charity that provides one of a kind programs and services that adapt everyday experiences empowering individuals with special needs to grow, succeed, and belong. They provide caring, understanding, and structured environments for children and adults with special needs.

CASS Conference organizers look forward to welcoming AS families to Edmonton this summer and believe this collaboration with Alberta AdaptAbilities will provide our AS and child delegates with the “Animal Adventures” they and their caregivers will enjoy.

Attach a one-page summary of the 3-day Alberta AdaptAbilities program. Click here to download the program.Kids_Prog_3-Day

Please stay tuned to the CASS website for News Flash Updates on this exciting event!

www.angelmancanada.org

 

KayserBetten

www.KayserBettenus.com

Secure Sleep System

 

CASS Conference 2016

cass logoSave the Date — CASS Conference in 2016!

VENUE FOR EDMONTON 2016 CONFERENCE SELECTED

Conference Co-chairs Terry Singleton and Kent Fleming advise newsletter readers that the CASS Board has approved the Double Tree by Hilton in Edmonton as the venue for the 14th International Conference of the Canadian Angelman Syndrome Society, scheduled for 13 to 16 July 2016.

Watch the CASS Newsletter and Website www.angelmancanada.org for continuing updates as planning proceeds.  Thank you, everyone, for helping to get the word out about your Edmonton 2016 Conference!

We look forward to welcoming you to an informative and enjoyable conference.

Please stay tuned to the CASS website for News Flash Updates on this exciting event!

www.angelmancanada.org

CASS Conference 2016

cass logo

Save the Date — CASS Conference in 2016!

The Canadian Angelman Syndrome Society will be holding its 14th International Conference from July 14th to 16th, 2016 in Edmonton, Alberta. Directors Terry Singleton and Kent Fleming are Conference Co-chairs.

Please stay tuned to the CASS website for News Flash Updates on this exciting event!

www.angelmancanada.org

Thank You – CASS 2014 International Conference

THANKS FOR A WONDERFUL CONFERENCE!

“Unlocking the Possibilities” – Ottawa, Ontario, July 23rd to 25th, 2014

OtOtta

Congratulations to the organizers, speakers, and delegates at the 13th International Conference of the Canadian Angelman Syndrome Society, held in Ottawa, Ontario from July 23rd to 25th.

Thank you to our accomplished speakers –  it was enlightening to hear firsthand about the latest progress in research, daily living, and support like the CASS/ASF Angelman Syndrome Behaviour Modules.  We appreciate the opportunity your attendance gives families to hear your talks and ask questions in person.

Thank you to our organizers – the CASS 2014 Conference Committee  — well done, Ottawa.

Thank you to our fundraisers and donors – without you, our delegates would not have been able to get together for this informative and educational event.  A lot of sharing and good ideas were exchanged.

And the biggest Thank You to our delegates – we appreciate your participation – it was great to meet you all in person.  Conferences are valuable – and our kids are worth it.   See you in Chicago at the ASF 2015 Conference!

The Board of CASS

www.angelmancanada.org

cass@davincibb.net

 

Canadian Angelman Syndrome Society Conference 2014

cass logoCASS CONFERENCE IN OTTAWA

23 to 25 JULY 2014

For information on how to register for the conference and to see our 20-page Conference Booklet go to www.angelmancanada.org .   We look forward to welcoming you to “Unlocking the Possibilities” this July 23rd to 25th!

Take Advantage of our Great Room Block Rates – while they last!  Rooms at the Delta Ottawa City Centre (booked prior to June 23rd) cost $139.00 plus taxes per night. 

Delta Ottawa City Centre

Reservations Direct (613) 237-3600 x 6200

Toll Free 1-855-330-5360

Fax (613) 688-6821

Email   dotreservations.sm@deltahotels.com

Group Block Code   0714CASS

Group Name Canadian Angelman Syndrome Society

 

Our Speakers:

Dr. Ben Philpot – Gene Awakenings for the Treatment of Angelman Syndrome

Dr. Stormy Chamberlain – Induced Pluripotent Stem Cell (iPSWC) Models of Angelman Syndrome

Heidi Blackburn – First Timers’ Session

Dr. Julien Marcadier – Genetics 101

Dr. Wen-Hann Tan – Clinical Research in Angelman Syndrome

Dr. Ron Thibert – Seizures and Sleep in AS;  Seizure Treatment and Sleep Disorder Treatment Options; Adult Issues in AS ; and (with Dr. Portia McCoy) Gastrointestinal Issues in AS;

Dr. Ben Philpot – Insights From Mouse Models into the Pathophysiology of Angelman Syndrome

Dr. Charles A. Williams – Mosaicism in Angelman Syndrome;  Infancy to Adulthood:  Understanding Angelman Syndrome After Five Decades of Awareness

Eileen Braun – Update on AS Clinics

Mary-Louise Bertram – Technology for Communication; Workshop:  Updated Research, Communication Options, and Implementing at Home

Alex Dunn – Is Your Child Integrated But Not Fully Included?

Dr. Jane Summers – Update on the Angelman Syndrome Behaviour Modules; Update on Applied Behaviour Analysis and Angelman Syndrome

Diane News – Housing From the Ground Up

Betty Daley – Creative Solutions to Housing for People with Disabilities

Erin Sheldon – Lab: We Got an Ipad!  Now What do we do With it? ; Workshop – Parent Advocacy, Conversation Skills, and Emerging Literacy

J. Michel Longtin – Financial and Estate Planning for Families Impacted by AS

Kimberley Gavan – A Meaningful Day and the Power of Roles as well as – Interactive Sessions — “Ask the Doctors” , “Parent to Parent”, and “Ask the Professionals”

 

Canadian Angelman Syndrome Society International Conference 2014

The Board of Directors and the Community Relations Committee of CASS are pleased to advise that the Registration Booklet for the 13th International Conference of the Canadian Angelman Syndrome Society, “Unlocking the Possibilities” is now available.

Conference Committee Co-chairs, Tim Klein and Chris du Plessis look forward to welcoming delegates to Ottawa from 23 to 25 July 2014 to hear presentations from an outstanding slate of speakers.

For more information visit http://www.angelmancanada.org/conferences/ and download your registration booklet

See you in Ottawa!

CASS