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Angelman Network – January edition 2014

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www.angelmannetwork.com
Fundraising — and other side-effects
Otorcross

All support organizations have their own formal set of aims and objectives, programmes and plans — and all require funds to action them. Fundraising involves time and effort, which has the potential to lead to more stress. However It is often intriguing and sometimes uncanny, how a good fundraiser is able to generate many other spin-offs that are often unexpected but ultimately positive for all involved.

In New Zealand, our population is just under 4.5million. It has become a cliché to say that the ‘six degrees of separation’ that supposedly connect every human being on the planet are reduced to two in ‘Godzone’. Most of us have either met the Prime Minis-ter, know an All Black, or have a friend or family member who knows a NZ ‘celebrity’. This works to our advantage when raising national awareness about AS.

In this vein, The Angelman Network is fortunate to have many enthusias-tic families across the country who have initiated a variety of very successful, enjoyable and different fundraisers: all with a Kiwi flavour and wonderful ‘side-effects’. Apart from the funds raised, they have served to distribute our AS informa-tion, raise awareness, encourage local community support, generate a wider public interest in AS and strengthen our networks. In time, this positive ripple effect will filter back to create helpful changes for our angels and families, nation wide.

Our first IAD event triggered some creative celebratory initiatives that involved angel-mufti days at schools and workplaces, a formal movie night, market stalls, raffles, and Trademe auctions. Families were very proactive with the media, result-ing in eight newspaper articles that reached out to thousands of readers across the country.
In March, Nadine Henderson facili-tated a hugely successful Charity Auction at her work’s annual confer-ence. This brought in over $30K and spread awareness across Assurity’s nation-wide offices, as well as to all the various businesses who had kindly donated goods.

Laura Green’s family live on a large farm in a rural district. They love the outdoors and Motorcross and their unique Racing event for adults and children in honour of their angel, Lexy, was extremely well supported. With an entry fee, refreshments and raffles for sale, it was a memorable family day that strengthened ties within their local community.
Kathryn Cherie-Hope was inspired to organise a 15km Walkathon in her local district. It was a well received social event that also promoted this powerful message:
Kathryn’s informative article which appeared in a local newspaper and online, and was recently spotted by Attitude TV who are interested in an interview in the New Year—an opportunity to share her story as an angel-mum, with the nation.

Looking back at 2013, it is very encouraging to see how much groundwork has been covered in diverse social sectors, through these family fundraising endeav-ours; and we thank our families for that. We will soon be depositing the takings from our Christmas Collection Buckets – a very fruitful Shopping Mall fundraiser made possible by Neil and Louise Alcock.

On track with achieving our aims and objectives, 2014 is the year The Angelman Network proposes to focus on a pro-active plan for our involvement in AS Research. ‘Hope reigns

Supreme’.
[Ursula Cranmer, Chairperson ]
“We have chosen a 15 km walk because it is the 15th chromosome that is affected in AS; but also to symbolise the difficulty and length of time it takes our AS children to learn to walk, and the strength and determination it takes to get there.” – Kathryn Cherie-Hope
Angel Kaya with donated goods
Kathryn with angel Joel

 

The Angelman Network – September article

The Angelman Network www.angelmannetwork.wordpress.com

The Angelman Network www.angelmannetwork.wordpress.com

 

 

 

 

 

 

 

 

 

 

 

 

PODD Workshop hosted by Talklink www.talklink.org.nz

Gayle Porter, founder of the PODD system of communication http://www.cpec.org.au/gayle_porter.html

PODD Books: http://teachingall.blogspot.co.nz/2008/11/podd-partner-assisted-communication.html

Spectronics: http://www.spectronicsinoz.com/product/pragmatic-organisation-dynamic-display-podd-communication-books-direct-access-templates