The Amazing 2014 International Angelman Day Awareness Campaign

by Paula Evans, Chairperson, FAST

We tweeted, we posted, we gathered with family and friends and we called in some heavy hitters, all to help us raise awareness of Angelman Syndrome in the most unique and fun campaign to date for International Angelman Day 2014.FAST image2

It began with a simple message, Ainsley is my reason #cureangelman, and quickly spread like wildfire throughout Facebook. Newsfeeds were flooded with pictures of our beautiful children and messages of hope and inspiration. The Angelman community took a crash course in tweeting and wasted no time in flooding Twitter with tweets about Angelman Syndrome and our cause.

Foundation for Angelman Syndrome Therapeutics (FAST) spokespersons Colin Farrell, Jai Courtney and Retta created personal, heartfelt video messages to share with the world. They were quickly joined by Josh Peck, Wilmer Valderrama, Shenae Grimes, Josh Beech, Melissa Peregrym and the NBA Washington Wizards who all wanted to help us reach as many people as possible with our awareness campaign. Enrique Iglesias took time out during a concert performance to re-tweet out a message from FAST to his millions of followers. People.com, Just Jared and Wonderwall were just some of the online websites to cover our story.

In other words, it was huge!! It is impossible to tell just how many people we were able to reach but we know it was at least 4,950,382 on Twitter, 83,230 on Facebook and 22,463 via YouTube – absolutely amazing!!

After the community worked their fingers off on this very successful social media campaign, we all went out to dinner at Ruby Tuesday restaurants to celebrate and raise money. The Ruby Tuesday Give Back program raised over $9,500.00 for FAST. Online donations stand at $31,797.96 and counting. Other community events such as Skate for a Cure, Hoops for Hope, Spaghetti Lunches and other community and restaurant fundraisers should bring our total to at least $65,000.00 – enough to fund much needed research.

FAST imageTo view celebrity videos, please visit our website at www.CureAngelman.org. FAST cannot possibly thank everyone who participated in International Angelman Day 2014 and made it more successful than we could have ever imagined. Well done Angelman community, well done!!