Letter from the Editor May-June 2014 edition
After my son Nathan was diagnosed, our geneticist handed us some information about AS by the Angelman Syndrome Foundation. I quickly went to the website to learn as much as I could. When I learned of the annual walk that I could host in my area, I had to get involved. I wanted to meet other families and see other Angels. I did not know how I was going to pull it off, but I was determined and when I get determined… watch out!
I can hardly describe the feelings I felt when meeting so many families, hearing their stories and seeing the abilities of the Angels. After my first walk I had this overwhelming feeling of joy that helped heal a small part of me that was broken hearted about the diagnosis. I was happy to raise funds for research that not only is searching for a treatment but is discovering ways to help individuals with AS today, like treating seizures with the Low Glycemic Index Diet.
It is a true blessing when we can take time out of our crazy schedules and get together as a community and raise funds for any AS organization. I hope you all have a wonderful time.
Editor – in – Chief