Dear Parent/Caregiver:

Many families of individuals with Angelman syndrome struggle to cope with challenging and difficult to manage behaviors. These behaviors can have a major impact on family life and also prevent the individual from participating fully in activities at home, school or in the community.

The Canadian Angelman Syndrome Society (CASS) and the Angelman Syndrome Foundation (ASF) have created a series of instructional modules to help families understand and address challenging behavior in individuals with Angelman syndrome. These modules can be accessed at

We would like to enhance these modules by adding video clips of individuals with Angelman syndrome engaging in challenging behavior and demonstrating options for what parents and caregivers may do differently in these situations. In order to do so, we are seeking families who are attending the CASS conference in Edmonton and are willing to be videotaped interacting with their son or daughter and receiving coaching on Wednesday July 13 and/orThursday July 14, 2016.

If you are interested in volunteering to participate in videotaping during the CASS conference, please indicate you would like to participate by sending an email message to We will then get back to you with further details.

Please take a moment to respond to this very short survey regarding behaviors that are most concerning for you and your family.

This survey will close on Friday, June 24, 2016 at 11:30 p.m. CST.

Thank you in advance for considering this important opportunity to help the Angelman community.