Home » Posts tagged "Angelman Syndrome"

“Trick or Treat” Halloween Stickers, Cards and AAC Image

Here are some tips to help make your Halloween experience a little more 'Happy' and a little less 'Tricky' when you have a child with Angelman Syndrome. There is lots of fun to be had when participating in community Trick or Treating or attending Fall Festivals. We want our children to participate and be accepted in these activities. Select the right ...

What Angel Parents are saying about the Kayserbetten bed

“Justin absolutely loves his bed, he goes to it right after his bath every day after school for his nap! He takes me by the hand to lead me there, lol.  We got it last December for my house. It took me a little over a year to get him one at his father's house since his old Vail bed ...

Free App Friday 8-25-17

There are so many communication apps available for the Apple ios, leaving Android users feeling left out. We are happy to share with you a FREE communication app now available for Android! Check out this AAC app called 'AngelTalk'. About the app from Google Play: AngelTalk was built to help the children with complex communication needs talk with their parents and caregivers ...

Angel Goes Packing

By Alisa Guilietti Hi, my name is Nicolas and I am a 15-year-old who has Angelman Syndrome (AS). It's a rare genetic disease affecting my 15th chromosome. For me, it means I speak only two words rarely, my walking is unbalanced, I need help with a lot of my daily activities and I really like getting into things, so someone needs ...

Treating Constipation

Treating Constipation Easy tips for treating constipation - A common symptom of Angelman syndrome. When you see constipation listed as a symptom of Angelman syndrome, do not lose hope that it cannot be treated. A diagnosis of Angelman syndrome does not necessarily mean one is destined to suffer from all of the symptoms often associated with the genetics. Many individuals that follow these ...

AAC App Discounts for Autism Awareness Month April 2017

Here is a complete list of Augmentative and alternative communication (AAC) apps that are on sale for a limited time during this month of April. Links below make it easy to find the right app from the (ios) app store. *CoughDrop and Alexicom are also available for android devices: Note: Use the Family Share program (ios) to download the apps to your ...

Charlotte’s Web CBD Oil

Charlotte's Web CBD (Cannabidiol) is becoming one of the most popular choices to help treat epilepsy in individuals with Angelman Syndrome. Some parents are also reporting that they have noticed improved behaviors. Although this hemp oil is available to order online and ship directly to your home it is highly recommended that you consult with a doctor that is trained ...

Holiday Gift Guide 2016

It is not always easy to try to find the perfect gifts for our Angels for the holidays, so here are some suggestions from our fellow Angelman parents. The links to these products in the presentation work directly to the websites where you can purchase these items. Enjoy! You can download this file in a PDF with live working links here: 2017holidaygiftguide ...

The Low Glycemic Index Treatment for Angelman Syndrome and Prader-Willi Syndrome

By Sybille Kraft Bellamy Mother of Maxent, AS 14 years old. Thirteen years ago in July 2003 Maxent was diagnosed with Angelman syndrome (AS), he was 18 months old. Today he is a handsome teenager in excellent physical condition with no medical issues. Nevertheless, this was not always the case. From infancy to his toddler age he was chronically sick and he spent ...
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