Home » Posts tagged "July/August 2013 edition"

Clinical Trial of LGIT Proves Effective for Reducing Seizures by 80-90%

Clinical Trial of Low Glycemic Index Treatment proves effective for reducing seizures by 80 – 90% Dr. Thibert and Dr. Elizabeth Thiele (both are members of the Scientific Advisory board for the Angelman Syndrome Foundation) were able to launch a clinical study to determine the efficacy of the Low Glycemic Index Treatment in reducing seizures in individuals with Angelman Syndrome.  In ...

Marital Stress, part 2

Marital Stress (part 2 from July edition) By Marc Bissonnette   “It is both the words you choose, as well as your tone that makes the difference.” “Look, I work all day, I bring in all the money, I pay for everything in the home, as well as your vacations – I don't think it's unfair that I ask you to pull your own weight” ...

FAST Update on Minocycline

Uncharted Waters - An Update From FAST On The Minocycline Clinical Trial   In March of 2013, the Tampa 24, wrapped up their final visits to Tampa General Hospital for the human clinical trial to test the efficacy of minocycline in treating symptoms of Angelman Syndrome (AS). The “Tampa 24” is the name penned by the Angelman community for the 24 children randomly chosen to ...

Marital Stress, Part 1

Marital Stress in an Angelman Syndrome Family By Marc Bissonnette 86%, 90%, double the national average, “significantly higher” - All those are applied often to the divorce rate amongst families of the multiply disabled. There is some debate amongst researchers about the true rate of divorce, but they often focus on a specific disability or on a generic syndrome, such as Autism ...

Healthy and Fit with 5 Kids; 3 Angels!

Healthy and Fit with 5 kids; 3 Angels! No Time For Health and Fitness Because You Have an Angel? Let me introduce you to a very special Texan Mom with five children, Jessica. Included in her five kid count; is Jessica’s 10 year old son Yeshua, (typical) who likes to help his mom with the babies and who loves spending time with ...

Angels in Action – Carter’s Story

Carter learns to regulate his behavioral response by eliminating allergens and receiving RDI therapy: By Nealie Prewitt of Missouri Once Carter was diagnosed with Angelman syndrome;  It didn't take long for us to learn what life with an 'Angel' meant.  Sleep deprivation, behaviors, therapies, colds that always got worse, and social obstacles were some of the biggest challenges for us and Carter. ...

Gluten Free Living

Gluten Free Living By Isabel Orellana Over the years, gluten has become a much debated substance. But what is the fuss all about? It is estimated that 5-10 percent of the US population is sensitive to gluten. This would mean that 5-10% of our angels are sensitive. However, the number is probably much higher. When our angel first got diagnosed at 11 ...

Reflexology – Relax and Sleep

Reflexology By Mariano Schiffini   At  Casa Angelman Foundation, we implement daily or weekly therapy in our Educational Therapy Center where Angels can enjoy the benefits of this millennia old technique. Hyperactivity, ADD and the sleep disturbances that are so common in children with Angelman are being treated with reflexology yielding excellent results!  Reflexology is a natural technique that is based on the principle ...

Angels in Action – Shea’s Story

Shea teaches himself to read! By Carol Pulver of Florida Angel Mom to Shea 22 years old, AS Del + Shea (pronounced Shay), our youngest, weighed a whopping 6 ½ lbs at birth.  The largest of our 4 sons; his delivery followed an unremarkable pregnancy and he was born close to my due date.  Shea’s Apgar scores (the tests done shortly after birth) ...