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Resources, Research and Inspiration for individuals with Angelman Syndrome

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  • Angelman Syndrome Greece,  AS Family article,  AS Foundations

    Introducing The Kourkouta Family And The Angelman Greece Organization

    March 17, 2015 / Comments Off on Introducing The Kourkouta Family And The Angelman Greece Organization

    By Clairy Kourkouta “Whenever I thought of myself as a mother, it never crossed my mind that I could have a child with special needs.” I always admired the families of special needs children so much and in fact I was saying that for people with special needs it’s really difficult to live in Greece, since common things such as government allowances, extra benefits, schools etc are things that someone has to look for by him/herself. A year ago and after a series of specialized tests, we found out that our sweet little girl, Olia has Angelman Syndrome, del +. By the time we got the results, we were sure…

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  • AS Foundations,  International Angelman Day,  The Angelman Network

    Angelman Network – International Angelman Day 2014

    March 13, 2014 / Comments Off on Angelman Network – International Angelman Day 2014

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  • International Angelman Day

    International Angelman Day Collage

    March 13, 2014 / Comments Off on International Angelman Day Collage

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  • International Angelman Day

    Do You Know Angelman Syndrome?

    February 14, 2014 / Comments Off on Do You Know Angelman Syndrome?

    Trained by the most elite military and civil services, yet nothing can prepare someone for having a child with special needs. Angelman syndrome is a neuro genetic condition, often misdiagnosed as Autism or Cerebral Palsy. Symptoms include developmental delay, seizures, no speech, limited mobility, a happy demeanor – frequent laughing, smiling and excitability. International Angelman Day Feb 15th For more information visit www.angelmantoday.com

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  • AS Foundations

    International Angelman Day 2013

    September 13, 2013 / Comments Off on International Angelman Day 2013

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Our story

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would  have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

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Angelman Today – A Global Perspective on Angelman Syndrome

Angelman Today is an online resource featuring information, research and inspiration for all things related to Angelman Syndrome. This website is created for families by families. Our articles feature information that we hope will revolutionize the current care and standard of practice for the treatment and education of those affected by AS.

Angelman Today offers every Angelman Syndrome Foundation across the globe the opportunity to submit articles so that everyone can benefit from the brilliant minds involved in the care, research and treatment of those affected by AS. We embarked on this project to put the best and brightest from around the world at your fingertips.

Angelman Today is a lifestyle guide to achieving better health for individuals with Angelman Syndrome and their families. It is written with your needs in mind but is not a substitute for consulting with your physician or other health care providers. The publisher and authors are not responsible for any adverse effects or consequences resulting from the use of the suggestions, products or procedures that appear on this website or online magazine. All matters regarding your health should be supervised by a licensed health care physician. Copyright 2023 Angelman Today. All rights reserved worldwide.

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