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Books about Angelman Syndrome
Happy New Year! This is the first blog post of the year and we wanted to share all of the books that we could find about Angelman Syndrome. We polled the community for a list of books that they have read and recommend. Some books have been written by educators, parents or made to support individuals with AS. We are so excited about all of the books that are now easily available because they all help to raise awareness about Angelman Syndrome. Please let us know if we need to add any others to this list. The first book on the list was written by Stephen N. Calculator Angelman Syndrome:…
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November is Epilepsy Awareness Month
“Genes are not our destiny, they are contantly being altered”. Dominic D’Agostino, PHD Watching our sweet children suffer from epilepsy is heartbreaking. Every second feels like an eternity. When an Angel is lost due to SUDEP (Sudden Unexpedect Death in Epilepsy) it is felt by the entire community. Epilepsy affects the majority of individuals with Angelman Syndrome but it does NOT mean that nothing can be done. We are going to share with you stories from several AS families that have been able to STOP seizures or significantly reduce them with diet therapy. Did you know that there was a small clinical study done in 2012 on the most flexible…
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The 2023 Holiday Gift Guide!
The Holiday Gift Guide is here! Your heart will fill with joy when their face lights up with the perfect gift.We know that shopping for your loved one with special needs can be challenging. Every year we create the Holiday Gift Guide to help make your shopping easy and their holiday magical! This year’s 2023 Holiday Gift Guide is full of great gift ideas for all ages including; 🎁 sensory toys🎁 learning toys 🎁 adaptive clothing🎁 stocking stuffers 🎁 gifts under $25, and more! Click the button below to download ⬇️ CLICK HERE TO DOWNLOAD YOUR HOLIDAY GIFT GUIDE. Click here to visit the Ultimate Amazon Special Needs Shop Follow The…
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Starting the New Year Right with Wike.
Christmas came a little early for Nathan thanks to Wike – the Walk and Bike Company! Nathan is now a teenager and it’s been several years since he outgrew our old jogging stroller. I really missed taking him out for jogs. He is able to walk but he doesn’t like to walk long distances, especially in the Florida heat. I needed to get back out in the sun and fresh air. We’ve been in-doors a little too much these past two years. I’ve been listening to Podcasts with Dr. Mark Hyman and Dr. David Perlmutter talking about the scientific evidence that walking out in nature can have a profound effect…
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We are winning with Wings CBD
Everyone is talking about the benefits of CBD (Cannabidiol). As parents to special needs children we are paying extra attention because we are hearing particular benefits including better sleep, improved behaviors, reducing and stopping seizures. This sounds like music to our ears but where do we begin? Luckily, I didn’t have to look any further than our very own Angelman community. Wings tinctures are a customized full-spectrum hemp formula created by a fellow Angel Mama, Shari Perkins! I got the chance to chat with Shari on a Facebook live call which I broadcasted on the Angleman Today Facebook page. I wanted to get a better understanding of the exploding industry…
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How to prepare for a fun summer beach day with our loved ones with special needs.
When we prepare for a fun day at the beach, it is not as easy as grabbing a beach towel, bathing suit, or sunscreen. For families like ours, it takes a little more preparation. We recently took Nathan to Clearwater beach, FL and we had a wonderful day! I wanted to share my tips with you and make a little checklist of items to help you as you plan for a day at the beach this summer. It can be a challenge. I always worry about Nathan near water. If the idea of getting out and going to the beach may sound daunting and make you feel overwhelmed, I promise…
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The Search for Sleep in Angelman Syndrome – What you need to know about Melatonin
The Search for Sleep in Angelman Syndrome. Here are some of the benefits and risks associated with using melatonin to help individuals with Angelman Syndrome sleep. Sleep disorders are a symptom of having Angelman Syndrome. Do not confuse that for meaning every individual with AS is unable to ever achieve proper sleep. This is a very complex topic, so let’s start where Angelman Syndrome research started. Effects of Low Dose of Melatonin on sleep in children with Angelman Syndrome. In this study, they used 0.3 mg of melatonin. Blood samples were withdrawn to measure individual endogenous serum melatonin levels. They noticed a significant decrease in motor activity during sleep and…
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Transitioning into Adulthood with our Angels.
How to help your loved one with Angelman Syndrome transition into adulthood. Find resources for local programs after they have aged out of school and long-term care options. By Carol Hare, Mother to Jack, age 22. The Hare family is from Texas. As my angel’s 8th birthday approached, I was already thinking about what it would be like when he turned 18. Where would he be cognitively? Would we still be here and able to care for him? Also, would we be able to meet all of his needs? If not, how can I plan now to help secure his future? Are there programs that I can apply for today?…
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Happy Halloween! I Can’t Say “Trick or Treat” But I Am Trying.
Enjoy “Trick or Treating” with your community this year! Let the T-shirt do the explaining. Nathan’s shirt reads Hi! I have Angelman Syndrome. I can’t say “Trick or Treat” but I am trying. Thank you for understanding. Happy Halloween. There are stickers, bags, sweatshirts, and buttons available with this print. Make sure you place your order by October 18th to receive it by the 31st. Multiple shipping options are available. International shipping is also available! Buy your Angelman Syndrome Halloween gear here. Shirts and products for our friends with Autism are available with this link: here. Did you know that Target stores also have an adaptive line of Halloween Costumes?…
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Back to School Tips for Parents of Children with Special Needs
It’s time for a new school year and “new” is not always easy so we have dedicated this blog post to help you and your loved one get back into the school routine. Master the Mindset Be aware of any negative feelings or anxiety you may have about the new school year. Your child will pick up on that. Look forward to the new year with a positive mindset. Feel excited about all of the opportunities they will have such as, learning new things, make new friends, and feel included by their peers. Also, feel confident that you have done your best in the IEP meeting. There will be more…
