Angels in Action
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Angels in Action – Daniel
By Lyn Barnes Daniel is 25years old, lives in Dubbo NSW Australia, and has the best social life of anyone I know (including me). He loves to go anywhere and socialize with anyone. He goes ten pin bowling, the zoo, the movies, the local pub for lunch, and does Zumba twice a week. His smile is infectious and even though he suffers daily from chronic pain, that smile never leaves his face, making everyone who comes across him smile as well. My angel… Our angel…. half of Dubbos angel….
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Angels in Action – Dylan
Dylan is 7 years old and LOVES riding his new bike! He received it from another Angelman family at the DC walk in May. He enjoys riding into curbs and riding up into the neighbors’ lawns. He gets a big kick out of it! Dylan also loves riding his therapy horse Lark, doing anything outside, playing in water, watching TV/movies, Curious George, Thomas the Train, Disney, and being around other people. He is very social and makes friends everywhere he goes. He does not know a stranger and gives hugs and kisses to everyone. He loves his family and they all love him to pieces. Dylan will be in first…
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Angels in Action – Maddie
By Chris Starks, Father to Maddy, age 9 Madison Jordan Starks is our beautiful albino Angel that has truly blessed our family with her presence and her smile. Her ability to capture everyone’s attention with her blue eyes and long curly blond hair is a wonder and the norm everywhere we go. Madison is deletion + and suffers from seizures only when she is either overly exhausted or has a fever. Although Madison can’t talk and is limited on how long she can walk on her own due to her being visually impaired she has made great strides to become more independent. Maddy as she is affectionately known is the…
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Angels-in-Action Sweet Caroline
By Adrian Roberts, Mom to Caroline This is our Sweet Caroline and she was on her way to the 8TH grade prom in this pic. She attends Whittemore Park Middle and is 15 years old. She enjoys cheering for her school, was inducted into the Jr. Beta Club this year, and was on the Valentine’s Court at her school. She enjoys being with her family, staying current with social media, swimming (of course), playing with her sisters, lying on the beach, and making others around her smile. Her smile and laughter will illuminate any room she walks in. She tries her hardest at everything she does and she amazes us…
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Angels in Action May-June 2015
P.J. Snyder (Age 27, has Angelman Syndrome del +) crossing the finish line last August at the Boulder Ironman. His partner Dennis, with Athletes in Tandem, finished the 140 mile event in 15.5 hours. What an awesome experience!
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Angels in Action March-April 2015
Luke and Zach are identical twins (UBE3A) who will be 8 in May and are the youngest of six boys.We live in a little coastal village called Downings, Co. Donegal, Ireland. Living in a small rural community definitely has its advantages as the support that we get from family and friends cannot be bought. My family are involved in the hospitality trade, so everyone knows the boys and they are accordingly acknowledged wherever they go. It’s lovely to walk in to the hotel and there’s high 5’s going on all around- little celebrities in their own right! The twins have very different personalities with Luke being the more serious…
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My Sister has Angelman Syndrome – Documentary by a New Zealand Film Student.
This documentary was created by Lucy, sister to Alice. Alice has Angelman Syndrome. “My name is Lucy Holyoake, I’m from Wellington in New Zealand. I’m a film student at University and I have a 17 year old sister with Angelman Syndrome. I would just like to share my short documentary film I made about my sister, Alice Holyoake. I would love for families with Angelmans kids to be able to see it, as I think they would be very interested.”
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Angels in Action – Sydney
Celebrating the Abilities of our Angels By Suki Sandhu, Mom to Sydney age 19 We did not receive an official diagnosis for Sydney until she was 15 years old. I always knew there was something more than just being developmentally delayed. Physician after Physician did not know. The diagnosis was not going to change anything about Sydney, it was for me. It helped me understand and was therapeutic for my 15 years of unanswered questions. To do my part and help raise awareness, I had the opportunity to speak with the medical staff of Great Ormond Street Hospital and reminded them that the diagnosis is as important for the parents. Sydney…
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Angels in Action – Joshua
Angels in Action By Yvonne Hamrick, Mom to Joshua age 10 Joshua is an artist. He LOVES to paint. Our family is so proud of him for pursuing his passions, and we want to share that dream with everyone. Joshua enjoys painting for others, but mostly for himself. He has been an artist all of his life, and he knew it before anyone else did. We are so glad that we gave him that first opportunity to paint! Not only are Joshua’s paintings a means of expressing himself, but it’s also a great organizing tool for his body. The squishy paint between his fingers and sometimes his toes. Joshua often…
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Angels in Action – Taylor
Celebrating the Abilities of our Angels Taylor is working hard in therapy. Pictures provided by Julie Rice, Mom to Taylor, age 3 del +