AFSA – Association Francaise du Syndrome d’Angelman

AFSA - Association Francaise du Syndrome d'Angelman

AFSA - Association Francaise du Syndrome d'Angelman, AS Foundations

Sébastien LOEB, committed sponsor for the French Association of Angelman Syndrome (AFSA).

January 9, 2016 / Comments Off on Sébastien LOEB, committed sponsor for the French Association of Angelman Syndrome (AFSA).

“I am happy to bring some help to the children of AFSA fight their diseases. If I can families to stay positive, I would be filled. We spent a lovely day during filming, it was nice to share these moments with Gatien, the team and the association. I give my full support to the AFSA, just like Sébastien Loeb Racing and we will be delighted to welcome the children in the future, on the circuits or other events. ” – Sébastien LOEB “Can you imagine a more beautiful relationship, more beautiful friendship for a disabled child that he can establish with a great champion, a great sportsman who agrees to…

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Angelman Today
AFSA - Association Francaise du Syndrome d'Angelman, AS Foundations

The Secret of Mael: Cartoon about the difference

September 30, 2014 / Comments Off on The Secret of Mael: Cartoon about the difference

Le secret de Maël : dessin animé sur la différence The secret of Mael: cartoon about the difference Click to view The Secret of Mael: Cartoon about the difference http://youtu.be/d2sECQDAZG4

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Angelman Today

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.