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AS Family article

Inspirational Parent Quotes – Linda Rafert Yoakam

November 12, 2015 / Comments Off on Inspirational Parent Quotes – Linda Rafert Yoakam

Parent quote

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Our story

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would  have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

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Angelman Today – A Global Perspective on Angelman Syndrome

Angelman Today is an online resource featuring information, research and inspiration for all things related to Angelman Syndrome. This website is created for families by families. Our articles feature information that we hope will revolutionize the current care and standard of practice for the treatment and education of those affected by AS.

Angelman Today offers every Angelman Syndrome Foundation across the globe the opportunity to submit articles so that everyone can benefit from the brilliant minds involved in the care, research and treatment of those affected by AS. We embarked on this project to put the best and brightest from around the world at your fingertips.

Angelman Today is a lifestyle guide to achieving better health for individuals with Angelman Syndrome and their families. It is written with your needs in mind but is not a substitute for consulting with your physician or other health care providers. The publisher and authors are not responsible for any adverse effects or consequences resulting from the use of the suggestions, products or procedures that appear on this website or online magazine. All matters regarding your health should be supervised by a licensed health care physician. Copyright 2023 Angelman Today. All rights reserved worldwide.

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