Angelman Today

Resources, Research and Inspiration for individuals with Angelman Syndrome

  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact
  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact

Main Menu

  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact
  • AS Resources

    KayserBetten beds and how they can provide a safe night’s sleep for you and your Angel.

    May 4, 2017 / Comments Off on KayserBetten beds and how they can provide a safe night’s sleep for you and your Angel.

    The KayserBetten bed is one of the most highly recommended beds by parents of children with Angelman Syndrome. This bed will meet your child’s medical, safety and behavior needs. One comment we keep hearing from parents is how well THEY sleep at night knowing their child is safe in their room. The beds are spacious, call and find out the right size for your child. The KayserBetten bed may be eligible through your insurance provider. For more info call 1-800-574 ext. 308 www.KayserBettenUS.com If you have a KayserBetten bed and would like to share your story with us, it could be featured in the next edition of Angelman Today. Email…

    read more
    Angelman Today

    You May Also Like

    November is Epilepsy Awareness Month

    November 15, 2023

    Have Fun This Summer And Enjoy The Outdoors With A Swing

    August 24, 2018

    Back to School Resources

    August 1, 2024
  • AS Family article

    Aromatherapy and Angels March-April 2015

    March 17, 2015 / Comments Off on Aromatherapy and Angels March-April 2015

    By Shari Caspert, Mom of 18- year old Matthew There has been a lot of news about Essential oils and how they may help you with many health issues. This is very exciting, yet confusing at the same time. We have been using Essential Oils for the past 4 years in our home. We are always looking for options to help our son Matthew (age 18 with AS) to help him with sleep, behavior, anxiety, stress, focus, digestion and to keep his muscles strong and pain free. After much trial and research we have come to realize that his body is constantly changing and that we may need different strategies to…

    read more
    Angelman Today

    You May Also Like

    Starting the New Year Right with Wike.

    January 17, 2022

    How to survive the holidays.

    December 17, 2018

    Have Fun This Summer And Enjoy The Outdoors With A Swing

    August 24, 2018
  • AS Family article,  AS Resources

    Angel Family Experience with a Safety Sleeper

    May 8, 2014 / Comments Off on Angel Family Experience with a Safety Sleeper

    Angel Family Experience with the Safety Sleeper By Stephanie Moyer, Mom to Colin age 8 We have been using the Safety Sleeper for our son Colin for more than a year now. It has been a total game changer. Colin went from being up three to four hours every night, and he would kick the door and wake up the whole house. Since we received The Safety Sleeper, he sleeps 12 hours every night! We have seen the greatest difference when we travel. Before, we would go on vacation and Colin would average two hours a night — not much of a vacation! Now, we take his bed, and he…

    read more
    Angelman Today

    You May Also Like

    How to prepare for a fun summer beach day with our loved ones with special needs.

    July 23, 2021

    Starting the New Year Right with Wike.

    January 17, 2022

    Best iPad Apps List Suggested by Parents

    August 26, 2018
  • AS Family article

    Our Family Sleep Tips

    May 8, 2014 / Comments Off on Our Family Sleep Tips

    By Shari Caspert We learned the best tip at our very 1st Angelman Conference 15 years ago: Change Matthew’s bedroom door to a dutch door!   It is the safest place in the house for him, he can play, have privacy and when he does not sleep we know he is safe! Thanks to his dutch door, he sleeps in a regular bed and has room to roam. Part of his nightly routine includes; diffusing therapeutic grade Young Living Essential Lavender in his room an hour prior to sleep and an Epsom salt bath with a few drops of Lavender. We love “pure” therapeutic grade lavender because it assists with sleep and…

    read more
    Angelman Today

    You May Also Like

    The Angelman Syndrome Foundation Has A New CEO, Amanda Moore.

    September 7, 2019

    How to prepare for a fun summer beach day with our loved ones with special needs.

    July 23, 2021

    We are winning with Wings CBD

    October 5, 2021
  • AS Family article

    Angelman Syndrome and Sleep Disorders

    January 10, 2014 / 1 Comment

    Angelman syndrome children and adults have serious sleeping disorders. by Sybille Kraft Bellamy Apart from seizure problems, it is one of the most difficult aspects of the syndrome to live with. Some angels sleep only a couple of hours a night, some fall asleep easily but wake up very early and some fall asleep very late and sleep late in the morning. This can disturb the school schedule or therapy sessions and it is exhausting physically and psychologically for the parents and caretakers. The majority of angels, do not take naps and when they fall asleep it is usually late in the afternoon which disturbs the usual sleep pattern. In order to increase the chance for our angels…

    read more
    Angelman Today

    You May Also Like

    Best iPad Apps List Suggested by Parents

    August 26, 2018

    Have Fun This Summer And Enjoy The Outdoors With A Swing

    August 24, 2018

    How to prepare for a fun summer beach day with our loved ones with special needs.

    July 23, 2021

Subscribe to our email 💌

* indicates required
/* real people should not fill this in and expect good things - do not remove this or risk form bot signups */

Intuit Mailchimp

Blogger

Our story

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would  have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

Categories

Tags

AAC-Augmentative and Alternative Communication ABA Therapy Angelman Respite Centre Angelman Syndrome Diet Angelman Syndrome research angelman syndrome sleep disorders Angels in Action Aromatherapy back to school Bio-Medical Treatments Constipation Diet Therapy Dr. Harry Angelman epilepsy treatment History of Angelman Syndrome IEP - Individual Education Plan International Angelman Day Kayserbetten bed Ketogenic Diet LGIT - Low Glycemic Index Treatment LGIT recipes Life with an Angel Mosaiscism in Angelman Syndrome reflux seizures Sleep safety UBE3A

Recent Posts

  • Back to School Resources
  • Books about Angelman Syndrome
  • November is Epilepsy Awareness Month
  • The 2023 Holiday Gift Guide!
  • Starting the New Year Right with Wike.

Browse Topics

What is Angelman Syndrome

Newly Diagnosed

Diet Therapy for Epilepsy

Resources for daily life

Books on Angelman Syndrome

Blog

Shop

  • Facebook
  • YouTube
  • Instagram
  • Mail

Angelman Today – A Global Perspective on Angelman Syndrome

Angelman Today is an online resource featuring information, research and inspiration for all things related to Angelman Syndrome. This website is created for families by families. Our articles feature information that we hope will revolutionize the current care and standard of practice for the treatment and education of those affected by AS.

Angelman Today offers every Angelman Syndrome Foundation across the globe the opportunity to submit articles so that everyone can benefit from the brilliant minds involved in the care, research and treatment of those affected by AS. We embarked on this project to put the best and brightest from around the world at your fingertips.

Angelman Today is a lifestyle guide to achieving better health for individuals with Angelman Syndrome and their families. It is written with your needs in mind but is not a substitute for consulting with your physician or other health care providers. The publisher and authors are not responsible for any adverse effects or consequences resulting from the use of the suggestions, products or procedures that appear on this website or online magazine. All matters regarding your health should be supervised by a licensed health care physician. Copyright 2023 Angelman Today. All rights reserved worldwide.

    2023 - © All Rights Reserved.
    Ashe Theme by WP Royal.
     

    Loading Comments...