Angelman Today

Resources, Research and Inspiration for individuals with Angelman Syndrome

  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact
  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact

Main Menu

  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact
  • Diet Therapy

    5 Tips to help you save money on groceries for a therapeutic diet

    January 10, 2018 / Comments Off on 5 Tips to help you save money on groceries for a therapeutic diet

    1. Buy in bulk from big box stores like Costco, Sam’s Club or Bj’s Wholesale. 2. Look for coupons in the mail, newspapers, online or grocery store apps. 3. Create weekly menus with your budget in mind. 4. Shop around the perimeter of the store. -The middle aisle usually contains processed foods that you want to avoid. 5. Buy fruits and vegetables that are in season. Seasonal fruits and veggies are less expensive than when out of season. *Bonus: Buying the fresh cuts of meat with the higher fat content is less expensive than the lean cuts which is better for increasing the fat ratio on the diet.

    read more
    Angelman Today

    You May Also Like

    Get Started On The High-Fat, Low-Carb Diet

    May 17, 2017

    Emergency Preparedness For Children With Special Needs That Follow A Therapeutic Diet

    November 8, 2013

    November is Epilepsy Awareness Month

    November 15, 2023
  • AS Resources,  Diet Therapy

    Get Started On The High-Fat, Low-Carb Diet

    May 17, 2017 / Comments Off on Get Started On The High-Fat, Low-Carb Diet

    Let’s start with listing healthy fat options that may not be so easy to find at your local grocery store. It is important to note that when starting a high-fat therapeutic diet make sure you are being followed by a medical professional. Use the best quality fat sources. Eat real unprocessed foods will be the key to success. We have created a helpful resource within the Ultimate Amazon Special Needs Shop – Dietary Therapy Category. We have listed helpful books and healthy fat options that you can get delivered right to your door. Diet therapy could be challenging as most things are but it will be worth it! Amazon Prime…

    read more
    Angelman Today

    You May Also Like

    Emergency Preparedness For Children With Special Needs That Follow A Therapeutic Diet

    November 8, 2013

    Have Fun This Summer And Enjoy The Outdoors With A Swing

    August 24, 2018

    Back to School Tips for Parents of Children with Special Needs

    September 27, 2019
  • AS Family article,  Diet Therapy,  Epilepsy

    This Is Max

    November 10, 2016 / Comments Off on This Is Max

    Frequently asked questions about Low Glycemic Index Treatment (LGIT) Edited by Heidi H. Pfeifer, RD, LDN, Clinical Dietitian at Massachusetts General Hospital 1. What is the Low Glycemic Index Treatment (LGIT)? The LGIT is a special high-fat diet similar to the ketogenic diet that is used for difficult-to-treat seizures. It focuses on both the type of carbohydrate, low glycemic index, as well as the amount of carbohydrate-based on portion sizes and household measurements. The glycemic index (GI) is a measure of the effect of carbohydrates on blood sugar levels. When carbohydrates are digested, they release glucose into the bloodstream. Carbohydrates that digest rapidly have a high GI. Carbohydrates that are…

    read more
    Angelman Today

    You May Also Like

    Tips for Managing Holiday Stress

    November 20, 2013

    New Year’s Resolutions for Special Needs Families

    January 6, 2019

    Transitioning into Adulthood with our Angels.

    October 14, 2019
  • AS Research,  AS Resources,  Diet Therapy,  Epilepsy

    The Low Glycemic Index Treatment for Angelman Syndrome and Prader-Willi Syndrome

    July 17, 2016 / 2 Comments

    By Sybille Kraft BellamyMother of Maxent, AS 14 years old. Thirteen years ago in July 2003 Maxent was diagnosed with Angelman syndrome (AS), he was 18 months old. Today he is a handsome teenager in excellent physical condition with no medical issues. Nevertheless, this was not always the case. From infancy to his toddler age he was chronically sick and he spent more time in the hospital than at home. Very quickly I had the certitude that diet should be the best accessible and fastest way to help him. Following my own observation and encouraged by Max’s pediatrician (and later by our neurologist), I started paying attention to his diet…

    read more
    Angelman Today
  • Diet Therapy,  LGIT Recipes

    LGIT Almond Mousse

    November 7, 2014 / Comments Off on LGIT Almond Mousse

    read more
    Angelman Today

    You May Also Like

    5 Tips to help you save money on groceries for a therapeutic diet

    January 10, 2018

    Emergency Preparedness For Children With Special Needs That Follow A Therapeutic Diet

    November 8, 2013

    Get Started On The High-Fat, Low-Carb Diet

    May 17, 2017
  • Diet Therapy

    Dr. Ron Thibert Answers Your Questions

    November 7, 2014 / Comments Off on Dr. Ron Thibert Answers Your Questions

    Ron Thibert, DO Director, Angelman Syndrome Clinic Director, Dup15q Center Ronald Thibert, DO, MsPH is a Pediatric Epileptologist with a interest in the treatment of epilepsy in children with autistic spectrum disorders. He is the director of the Angelman Syndrome Clinic and the Dup15q Center for MGHfC and the Lurie Center. Q: The diet seems so complicated prior to getting the hang of it – so where do we begin? Thibert: The diet is complicated and can be difficult but the important thing is to not get discouraged – it can take as long as 3-6 months to really start working. Dietary therapy should always be done under the supervision…

    read more
    Angelman Today

    You May Also Like

    Emergency Preparedness For Children With Special Needs That Follow A Therapeutic Diet

    November 8, 2013

    5 Tips to help you save money on groceries for a therapeutic diet

    January 10, 2018

    November is Epilepsy Awareness Month

    November 15, 2023
  • AS Resources,  Diet Therapy,  Epilepsy,  The Charlie Foundation

    The Fourth International Symposium For Diet Therapies

    November 6, 2014 / Comments Off on The Fourth International Symposium For Diet Therapies

    Matthew’s Friend’s Symposium – Liverpool UK 2014 By Sybille Kraft Bellamy A couple of weeks ago I had the opportunity to attend one of my favorite scientific symposiums: The 4th Global Symposium Ketogenic Dietary therapies for Epilepsy and other Neurological disorders. Over 27 countries were present sending the most eminent neurologists, researchers scientists in epilepsy, cancer, molecular biology and nutrition. They presented their clinical trials and laboratory results in the field of the Ketogenic diet. Angelman syndrome was represented by Dr. Elizabeth Thiele the neurologist from Mass General hospital in Boston who received the John Freeman award from Nancy Abraham (Co-founder of The Charlie Foundation) for her outstanding work in the…

    read more
    Angelman Today

    You May Also Like

    Back to School Resources

    August 1, 2024

    November is Epilepsy Awareness Month

    November 15, 2023

    Get Started On The High-Fat, Low-Carb Diet

    May 17, 2017
  • AS Family article,  Diet Therapy

    Hello Summer!

    July 12, 2014 / Comments Off on Hello Summer!

    Hello Summer!! By Sybille Kraft Bellamy “True health starts with fresh fruits and veggies” Summer is the perfect time to enjoy seasonal fruits and vegetables. The LGIT diet is a healthy diet when a high diversity of good quality products are used.  No “strange” food! Only real natural food without packaging! Our family, like most of the families who have an individual following the LGIT, eat low glycemic food. The principal difference is the modification of the fat ratio. Max has a higher fat ratio in all his meals in order to obtain the effects of the LGIT. Since mid spring, we have been able to find great fruits and…

    read more
    Angelman Today

    You May Also Like

    New Year’s Resolutions for Special Needs Families

    January 6, 2019

    Angelman Syndrome and Sleep Disorders

    January 10, 2014

    Transitioning into Adulthood with our Angels.

    October 14, 2019
  • Diet Therapy,  LGIT Recipes

    Healthy Fats – Avocado Tuna Lunch idea

    July 11, 2014 / Comments Off on Healthy Fats – Avocado Tuna Lunch idea

    read more
    Angelman Today

    You May Also Like

    Get Started On The High-Fat, Low-Carb Diet

    May 17, 2017

    Emergency Preparedness For Children With Special Needs That Follow A Therapeutic Diet

    November 8, 2013

    5 Tips to help you save money on groceries for a therapeutic diet

    January 10, 2018
  • AS Family article,  Diet Therapy,  LGIT Recipes

    Juicing

    May 8, 2014 / Comments Off on Juicing

    Juicing! By Sybille Kraft Bellamy A perfect way to provide a great amount of vitamins and minerals suitable for individuals following LGIT. Juicing has no limit!  Let your imagination do the work! There is so many options to make juices with the LGIT-authorized list of fruits and vegetables. One of Max’s favorite juices is a mix of carrot, celery, apple, cucumber, ginger, turmeric, and one teaspoon of olive oil. I keep the vegetables as the top quantity on the list of ingredients followed by one or two pieces of fruit and the olive oil helps to homogenize the juice. You can drink the juice, freeze it as a Popsicle, keep…

    read more
    Angelman Today

    You May Also Like

    Transitioning into Adulthood with our Angels.

    October 14, 2019

    Starting the New Year Right with Wike.

    January 17, 2022

    Tips for Managing Holiday Stress

    November 20, 2013
 Older Posts

Subscribe to our email 💌

* indicates required
/* real people should not fill this in and expect good things - do not remove this or risk form bot signups */

Intuit Mailchimp

Blogger

Our story

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would  have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

Categories

Tags

AAC-Augmentative and Alternative Communication ABA Therapy Angelman Respite Centre Angelman Syndrome Diet Angelman Syndrome research angelman syndrome sleep disorders Angels in Action Aromatherapy back to school Bio-Medical Treatments Constipation Diet Therapy Dr. Harry Angelman epilepsy treatment History of Angelman Syndrome IEP - Individual Education Plan International Angelman Day Kayserbetten bed Ketogenic Diet LGIT - Low Glycemic Index Treatment LGIT recipes Life with an Angel Mosaiscism in Angelman Syndrome reflux seizures Sleep safety UBE3A

Recent Posts

  • Back to School Resources
  • Books about Angelman Syndrome
  • November is Epilepsy Awareness Month
  • The 2023 Holiday Gift Guide!
  • Starting the New Year Right with Wike.

Browse Topics

What is Angelman Syndrome

Newly Diagnosed

Diet Therapy for Epilepsy

Resources for daily life

Books on Angelman Syndrome

Blog

Shop

  • Facebook
  • YouTube
  • Instagram
  • Mail

Angelman Today – A Global Perspective on Angelman Syndrome

Angelman Today is an online resource featuring information, research and inspiration for all things related to Angelman Syndrome. This website is created for families by families. Our articles feature information that we hope will revolutionize the current care and standard of practice for the treatment and education of those affected by AS.

Angelman Today offers every Angelman Syndrome Foundation across the globe the opportunity to submit articles so that everyone can benefit from the brilliant minds involved in the care, research and treatment of those affected by AS. We embarked on this project to put the best and brightest from around the world at your fingertips.

Angelman Today is a lifestyle guide to achieving better health for individuals with Angelman Syndrome and their families. It is written with your needs in mind but is not a substitute for consulting with your physician or other health care providers. The publisher and authors are not responsible for any adverse effects or consequences resulting from the use of the suggestions, products or procedures that appear on this website or online magazine. All matters regarding your health should be supervised by a licensed health care physician. Copyright 2023 Angelman Today. All rights reserved worldwide.

    2023 - © All Rights Reserved.
    Ashe Theme by WP Royal.
     

    Loading Comments...