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Angels in Action – Melissa Adams

By Kat Adams Melissa is 12 years old and has Angelman syndrome UPD. She loves to play games and laugh at her big Brother Jacob's jokes, she has a wicked sense of humor! Melissa won the 'Child of courage' award at an event in her home town, I was very proud that her fellow citizens chose to recognize her daily struggles and ...

Angels in Action – Maddie

By Chris Starks, Father to Maddy, age 9 Madison Jordan Starks is our beautiful albino Angel that has truly blessed our family with her presence and her smile. Her ability to capture everyone's attention with her blue eyes and long curly blond hair is a wonder and the norm everywhere we go. Madison is deletion + and suffers from seizures only ...

Angels in Action March-April 2015

  Luke and Zach are identical twins (UBE3A) who will be 8 in May and are the youngest of six boys.We live in a little coastal village called Downings, Co. Donegal, Ireland. Living in a small rural community definitely has its advantages as the support that we get from family and friends cannot be bought. My family are involved in the ...

Must See Angelman YouTube Video’s

Documentary To Watch Created by Lucy, sister to Alice Alice has Angelman Syndrome 'My name is Lucy Holyoake, I'm from Wellington in New Zealand. I'm a film student at University and I have a 17 year old sister with Angelman Syndrome. I would just like to share my short documentary film I made about my sister, Alice Holyoake. I would love for families with Angelmans ...

Angels in Action – Kamaray

Celebrating the Abilities of our Angels By Andria Sivill, Mom to Kamaray This is KamaraySivill, age 7 from South Sioux city NE riding her new adaptive TRIAID  bike she won through the Great Bike Giveaway. Kami is enjoying her summer & new found freedomriding in the outdoors. Thank you, Bart, Andria &  Kamaray Sivill     In the previous March-April edition of Angelman Today, we helped to promote  The ...

Angels in Action – Ishaar

Celebrating the Abilities of our Angels By Kiren Sandhu, Mom to Ishaar, age 5 Throughout the days (and nights), there is a lot of laughter.  Ishaar does all of the laughing, and I smile and tell him how silly he is. I enjoy listening to his laughter as it means all is well in Ishaars world. Ishaar loves to pull my hair and smell it (its his way of being ...