Angelman Today

Resources, Research and Inspiration for individuals with Angelman Syndrome

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  • Home
  • Angelman Syndrome
    • Newly Diagnosed
  • Shop
  • Resources
  • Blog
  • Digital Editions
  • About
  • Contact
  • AS Research

    Making Shopping A Little Easier This Holiday Season

    November 29, 2015 / Comments Off on Making Shopping A Little Easier This Holiday Season

    Caroline’s cart is helping to make shopping just a little easier. There are many challenges that come along with being a caretaker of an individual with special needs. Simple things like shopping for groceries are not so simple for us. The best inventions are usually created from a person’s desire to satisfy a need or to solve a problem they encounter in their own life. One set of parents did just that. Drew Ann and David Long have three children, Caroline is their middle child, she was diagnosed with Rett syndrome. The challenge came when Drew Ann went grocery shopping with her kids. She had a toddler and Caroline in…

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    Angelman Today
  • Special Offers

    Save 5% on If i Need Help

    November 16, 2015 / Comments Off on Save 5% on If i Need Help

    Download this PDF, print and give to your child’s teacher to post in class or give flyer to other parents.Save 5% If i Need Help ifineedhelp.orgNew window clings now available! Check out my interview with Erin and Bruce, creators of the “If i Need Help” brand.

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    Angelman Today

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    Happy Halloween! I Can’t Say “Trick or Treat” But I Am Trying.

    October 1, 2019
  • Angels in Action

    Angels in Action – Daniel

    November 13, 2015 / Comments Off on Angels in Action – Daniel

    By Lyn Barnes Daniel is 25years old, lives in Dubbo NSW Australia, and has the best social life of anyone I know (including me). He loves to go anywhere and socialize with anyone. He goes ten pin bowling, the zoo, the movies, the local pub for lunch, and does Zumba twice a week. His smile is infectious and even though he suffers daily from chronic pain, that smile never leaves his face, making everyone who comes across him smile as well. My angel… Our angel…. half of Dubbos angel….

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    Angelman Today
  • AS Family article,  Melissa Adams Angelman Foundation

    Angels in Action – Melissa Adams

    November 13, 2015 / Comments Off on Angels in Action – Melissa Adams

    By Kat Adams Melissa is 12 years old and has Angelman syndrome UPD. She loves to play games and laugh at her big Brother Jacob’s jokes, she has a wicked sense of humor! Melissa won the ‘Child of courage’ award at an event in her home town, I was very proud that her fellow citizens chose to recognize her daily struggles and her massive achievements in this way.  Melissa experiences life in such a way that every day is an adventure, she brings so much love and happiness into both mine and Jacob’s lives. We have set up a small Foundation in Melissa’s name to help support research into a cure for…

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    Angelman Today

    You May Also Like

    How to survive the holidays.

    December 17, 2018

    Have Fun This Summer And Enjoy The Outdoors With A Swing

    August 24, 2018

    Tips for Managing Holiday Stress

    November 20, 2013
  • AS Family article

    Inspirational Parent Quotes – Linda Rafert Yoakam

    November 12, 2015 / Comments Off on Inspirational Parent Quotes – Linda Rafert Yoakam

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    Angelman Today

    You May Also Like

    November is Epilepsy Awareness Month

    November 15, 2023

    Have Fun This Summer And Enjoy The Outdoors With A Swing

    August 24, 2018

    Tips for Managing Holiday Stress

    November 20, 2013
  • AS Family article

    Inspirational Parent Quotes – Regie Hamm

    November 12, 2015 / Comments Off on Inspirational Parent Quotes – Regie Hamm

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    Angelman Today

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    Angelman Syndrome and Sleep Disorders

    January 10, 2014

    How to prepare for a fun summer beach day with our loved ones with special needs.

    July 23, 2021

    New Year’s Resolutions for Special Needs Families

    January 6, 2019
  • AS Family article

    Inspirational Parent Quotes – Joell Gingrich Ketcham

    November 12, 2015 / Comments Off on Inspirational Parent Quotes – Joell Gingrich Ketcham

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    Angelman Today

    You May Also Like

    Starting the New Year Right with Wike.

    January 17, 2022

    The Angelman Syndrome Foundation Has A New CEO, Amanda Moore.

    September 7, 2019

    How to survive the holidays.

    December 17, 2018
  • AS Foundations,  Asociacion Sindrome de Angelman Spain,  Books

    New Book: Life With An Angel

    November 11, 2015 / Comments Off on New Book: Life With An Angel

     “What is Angelman Syndrome?” That is usually the first question we ask the doctor as soon as our child is diagnosed with this rare disease. The following questions may be of the kind: What can we do? Is there a treatment? What is their life expectancy? As soon as we become aware of the fact that there is no treatment or cure, our whole life is turned upside down. Each individual family deals with the situation the best way they can. Some choose denial. However, sooner or later, they will try to contact other families in the same situation who will be able to understand, to share their own experience…

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    Angelman Today
  • Uncategorized

    New Year Cover Contest 2016

    November 10, 2015 / Comments Off on New Year Cover Contest 2016

    “Like” and watch our Facebook page for upcoming details. www.facebook.com/angelmantoday Make sure to turn “ON” Notifications (from “none”) on your Facebook settings.

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    Angelman Today
  • AS Resources

    Trick or Treat – I may not speak…

    October 22, 2015 / Comments Off on Trick or Treat – I may not speak…

    For those with complex communication needs it is important to participate in activities with their peers. This Halloween we wanted to share these FREE cards and stickers to help make things easier. When Trick or Treating this year, your child can hand the cards to the person at the door or wear the adhesive badge on their costume. Download and Print for FREE! Share with your friends! We used Avery Adhesive Flexible Name Badges. Easily order from Amazon.com and get delivered to your door. Download the Avery adhesive labels here: Avery Adhesive label 8 per sheet-Angelman Syndrome Avery Adhesive label 8 per sheet-Autism   Download the cards here: Trick-or-Treat Cards…

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    Angelman Today

    You May Also Like

    Best iPad Apps List Suggested by Parents

    August 26, 2018

    Get Started On The High-Fat, Low-Carb Diet

    May 17, 2017

    November is Epilepsy Awareness Month

    November 15, 2023
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Our story

My son, Nathan, was diagnosed with Angelman Syndrome shortly after his second birthday. He didn’t walk until he was almost three years old. The prognosis that doctors gave him was grim. He wouldn’t be able to walk, talk, or do much of anything. The doctors said that Nathan would  have epilepsy, constipation, feeding issues, acid reflux, and sleep issues. Therefore, he would require lifelong care.

Today, Nathan runs, says “Mama and Papa”! Nathan’s seizures, that started when he was 15 months old, have stopped due to dietary therapy. Also, he has no more acid reflux, no more constipation! His sleep disorder is under control without medication. He sleeps ALL NIGHT! We have beaten the odds of Angelman Syndrome. He is not lucky, his progress was not by chance but because I started him on dietary therapy very early. Monitoring his health very closely has been crucial. Very specific, and in-depth testing, allowed us to dial in his health like a fine tuned race car.

This is the hope and inspiration I want to share with the world! His genes are not his destiny.

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Angelman Today – A Global Perspective on Angelman Syndrome

Angelman Today is an online resource featuring information, research and inspiration for all things related to Angelman Syndrome. This website is created for families by families. Our articles feature information that we hope will revolutionize the current care and standard of practice for the treatment and education of those affected by AS.

Angelman Today offers every Angelman Syndrome Foundation across the globe the opportunity to submit articles so that everyone can benefit from the brilliant minds involved in the care, research and treatment of those affected by AS. We embarked on this project to put the best and brightest from around the world at your fingertips.

Angelman Today is a lifestyle guide to achieving better health for individuals with Angelman Syndrome and their families. It is written with your needs in mind but is not a substitute for consulting with your physician or other health care providers. The publisher and authors are not responsible for any adverse effects or consequences resulting from the use of the suggestions, products or procedures that appear on this website or online magazine. All matters regarding your health should be supervised by a licensed health care physician. Copyright 2023 Angelman Today. All rights reserved worldwide.

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