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Healthy After School Snack – Carrots and Hummus
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Angels in Action – Dylan
Dylan is 7 years old and LOVES riding his new bike! He received it from another Angelman family at the DC walk in May. He enjoys riding into curbs and riding up into the neighbors’ lawns. He gets a big kick out of it! Dylan also loves riding his therapy horse Lark, doing anything outside, playing in water, watching TV/movies, Curious George, Thomas the Train, Disney, and being around other people. He is very social and makes friends everywhere he goes. He does not know a stranger and gives hugs and kisses to everyone. He loves his family and they all love him to pieces. Dylan will be in first…
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The History of Angelman Syndrome By Syndrome Angelman – France
En 2015 nous commémorons les 100 ans de la naissance du docteur Harry Angelman et les 50 ans de la découverte du syndrome d’Angelman. C’est un médecin anglais, le docteur Harry Angelman, qui a le premier, en 1965, rapporté ses constatations chez trois enfants atteints du syndrome qui porte maintenant son nom. Ce médecin avait remarqué que les trois enfants présentaient une démarche guindée et sautillante, riaient d’une façon excessive, avaient des crises d’épilepsieet avaient une petite tête aplatie à l’arrière. Harry Angelman est né à Birkenhead le 13 août 1915 et a suivi les cours de médecine à l’université de Liverpool. Il avait observé trois enfants qui étaient sans rapport, mais avec des symptômes similaires (sévérité…
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Angels in Action – Maddie
By Chris Starks, Father to Maddy, age 9 Madison Jordan Starks is our beautiful albino Angel that has truly blessed our family with her presence and her smile. Her ability to capture everyone’s attention with her blue eyes and long curly blond hair is a wonder and the norm everywhere we go. Madison is deletion + and suffers from seizures only when she is either overly exhausted or has a fever. Although Madison can’t talk and is limited on how long she can walk on her own due to her being visually impaired she has made great strides to become more independent. Maddy as she is affectionately known is the…
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Inspirational Parent Quotes – Maria Cano Moraleda
Nobody’s going to put limits on my son, only he decides what can and what cannot be… that’s my philosophy. -Maria Cano Moraleda Asociacion del Sindrome de angelman (Spain)
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Inspirational Parent Quote – Cindy Snyder
I am so blessed to have been “adopted” into the AS family when I adopted my son almost 20 years ago. PJ was a former student and I have never regretted the decision to adopt. What a joy to have met so many wonderful AS families along our journey. -Cindy Snyder
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Inspirational Parent Quote – Lisa Jamieson
One thing I know for sure is that being the parent of a child with Angelman Syndrome has taught me about true love — a love that means I’m learning (albeit slowly) to both give and receive help, to extend a lot of grace (to myself and others) and to live in a way that demands nothing in return. -Lisa Jamieson Speaker/Author
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The History of Angelman Syndrome translated into Portuguese
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Editor’s Letter July-August 2015
We are celebrating our 2nd year anniversary here at Angelman Today! Two years of creating this online magazine that has circled the globe countless times for our wonderful community. I could not do this alone. A big thank you to the many contributors who send me links, articles, and pictures to publish each month. This community is so amazing, if there is something online from a picture to an article they will even “tag” me to bring it to my attention for Angelman Today. For myself, it has been a fantastic opportunity for my creative expression and to share the information that I have learned from so many amazing parents…
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Angelman Today 2nd Year Anniversary
