-
Keto Power Comic Book Coming Soon!
Very soon you will be able to purchase the first ever comic book pamphlet about the Ketogenic diet. Learn how to use Keto Power to help fight epilepsy. Written by Sybille Krafty Bellamy, Mom to Maxent. Maxent was born with Angelman Syndrome, he was medically fragile from the beginning of his life. Sybille was determined to learn how to spend time and money in the kitchen and not in the hospitals. We will keep you posted and let you know as soon as it is available.
You May Also Like
Books about Angelman Syndrome
-
Meet Josh – Seizure free with CBD
Josh is 2 years old, he was diagnosed with Angelman Syndrome and having seizures every week. Video of his journey coming soon to our YouTube Channel! Thanks to CBD Oil (Cannabidiol) he has been seizure-free for OVER 1 YEAR!
-
This Is Max
Frequently asked questions about Low Glycemic Index Treatment (LGIT) Edited by Heidi H. Pfeifer, RD, LDN, Clinical Dietitian at Massachusetts General Hospital 1. What is the Low Glycemic Index Treatment (LGIT)? The LGIT is a special high-fat diet similar to the ketogenic diet that is used for difficult-to-treat seizures. It focuses on both the type of carbohydrate, low glycemic index, as well as the amount of carbohydrate-based on portion sizes and household measurements. The glycemic index (GI) is a measure of the effect of carbohydrates on blood sugar levels. When carbohydrates are digested, they release glucose into the bloodstream. Carbohydrates that digest rapidly have a high GI. Carbohydrates that are…
-
Editor’s Letter October – November 2016
The last quarter of the year is upon us and it never ceases to amaze me how fast time passes and although I enjoy the rollercoaster of events through the year the rhythm of time seems to slow, allowing me to simultaneously reflect and with eagerness and excitement plan for a new year. November is Epilepsy Awareness month and I would like to talk a little more about the importance of this. We understand that statistically the majority of individuals with Angelman Syndrome have epilepsy. When my son Nathan was first diagnosed with epilepsy, before the age of 2 (even before the AS diagnosis), the severity of it was never…
-
The Angelman Respite Centre
A Look Inside The Angelman Respite Centre 14400 Boul Gouin O., Pierrefonds, QC, H9H 1B1 www.angelman.ca
-
Editor’s Letter July 2016
This July 2016 marks the third anniversary of the very first edition of Angelman Today. The international reach and circulation of the magazine has been astounding, especially considering the topic of a rare neuro-genetic condition. This year we began publishing quarterly and strive for every edition to be better than the last. We want to provide you the reader with latest global news regarding Angelman Syndrome. As many of you may know, most Angelman organizations are run by fellow Angel parents and as parents and caretakers can only understand how difficult it is to carve out the time from our families and most importantly our Angels who require constant supervision.…
-
The Low Glycemic Index Treatment for Angelman Syndrome and Prader-Willi Syndrome
By Sybille Kraft BellamyMother of Maxent, AS 14 years old. Thirteen years ago in July 2003 Maxent was diagnosed with Angelman syndrome (AS), he was 18 months old. Today he is a handsome teenager in excellent physical condition with no medical issues. Nevertheless, this was not always the case. From infancy to his toddler age he was chronically sick and he spent more time in the hospital than at home. Very quickly I had the certitude that diet should be the best accessible and fastest way to help him. Following my own observation and encouraged by Max’s pediatrician (and later by our neurologist), I started paying attention to his diet…
-
KayserBetten – Secure Sleep System
Sleep is so important for our Angels and parents. Here is a great resource when sleep and safety are at the top of your list. The KayserBetten Secure Sleep System is used by many Angelman Families. Available in the US and Canada. www.KayserBettenUS.com
-
Life With An Angel
By Efi Paschalidou My husband and I wanted a child more than anything else in the world. After two years of trying we saw the magic line on the pregnancy test. Our joy was unspeakable. But unfortunately my pregnancy was difficult from the start. Placental abruption, hemorrhage, contractions from the 6th month, not being able to feel the baby, prematurity. We said that it is our child and we would adore it even if something went wrong. Finally we held her in our arms after many days in the incubator. Our doctor and the other doctors in the hospital told us that our baby was fine, that it was a…
-
Sébastien LOEB, committed sponsor for the French Association of Angelman Syndrome (AFSA).
“I am happy to bring some help to the children of AFSA fight their diseases. If I can families to stay positive, I would be filled. We spent a lovely day during filming, it was nice to share these moments with Gatien, the team and the association. I give my full support to the AFSA, just like Sébastien Loeb Racing and we will be delighted to welcome the children in the future, on the circuits or other events. ” – Sébastien LOEB “Can you imagine a more beautiful relationship, more beautiful friendship for a disabled child that he can establish with a great champion, a great sportsman who agrees to…
